The Ultra Rare Disease, Disorders, & Disabilities Foundation

Sunday, 13 December 2015

Ultra Rare Disease Must Be Included In The European Rare Disease Plan | Campaigns by You

Ultra Rare Disease Must Be Included In The European Rare Disease Plan | Campaigns by You
Posted by The Ultra Rare Disease Disorders And Disabilities Foundation at 07:18 1 comment:
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Friday, 11 December 2015

C Diff Foundation Launches Patient, Family Support Program | Safe HealthcareSafe Healthcare | Blogs | CDC

C Diff Foundation Launches Patient, Family Support Program | Safe HealthcareSafe Healthcare | Blogs | CDC
Posted by The Ultra Rare Disease Disorders And Disabilities Foundation at 02:31 No comments:
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These 13 Unbelievable Photos Won A Place In The Most Fascinating Medical Images Of 2015

These 13 Unbelievable Photos Won A Place In The Most Fascinating Medical Images Of 2015
Posted by The Ultra Rare Disease Disorders And Disabilities Foundation at 01:52 No comments:
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Wednesday, 9 December 2015

Shock figure of 400,000 people on hospital waiting list in Northern Ireland via @BelTel via @Linkis_com

Shock figure of 400,000 people on hospital waiting list in Northern Ireland via @BelTel via @Linkis_com
Posted by The Ultra Rare Disease Disorders And Disabilities Foundation at 08:44 No comments:
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Gene therapy: A promising candidate for cystic fibrosis treatment via @LeuvenU @EurekAlertAAAS via @Linkis_com

Gene therapy: A promising candidate for cystic fibrosis treatment via @LeuvenU @EurekAlertAAAS via @Linkis_com
Posted by The Ultra Rare Disease Disorders And Disabilities Foundation at 08:26 No comments:
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Sunday, 22 November 2015

Fatal Hemophagocytic Lymphohistiocytosis Associated with Locally Acquired Dengue Virus Infection — New Mexico and Texas, 2012

Fatal Hemophagocytic Lymphohistiocytosis Associated with Locally Acquired Dengue Virus Infection — New Mexico and Texas, 2012
Posted by The Ultra Rare Disease Disorders And Disabilities Foundation at 11:22 No comments:
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Rare and Ultra Rare Diseases�

Rare and Ultra Rare Diseases�
Posted by The Ultra Rare Disease Disorders And Disabilities Foundation at 11:02 No comments:
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Monday, 16 November 2015

Hand-washing: Do's and don'ts - Mayo Clinic

Hand-washing: Do's and don'ts - Mayo Clinic
Posted by The Ultra Rare Disease Disorders And Disabilities Foundation at 09:23 No comments:
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Friday, 13 November 2015

What Is Hemophagocytic Lymphohistiocytosis (HLH)?

What Is Hemophagocytic Lymphohistiocytosis (HLH)?
Posted by The Ultra Rare Disease Disorders And Disabilities Foundation at 03:20 No comments:
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Saturday, 7 November 2015

Greg Mulholland MP: Drugs for Ultra-Rare Diseases | PoliticsHome.com

Greg Mulholland MP: Drugs for Ultra-Rare Diseases | PoliticsHome.com
Posted by The Ultra Rare Disease Disorders And Disabilities Foundation at 04:41 No comments:
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Tuesday, 14 July 2015

This video will save a little boy's life #SavingDylan.com

Posted by The Ultra Rare Disease Disorders And Disabilities Foundation at 13:53 No comments:
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Friday, 19 June 2015

Rare Nerve Disorder Leaves Harlem Teen Paralyzed

Rare Nerve Disorder Leaves Harlem Teen Paralyzed
Posted by The Ultra Rare Disease Disorders And Disabilities Foundation at 04:24 No comments:
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ReAttach – The Exciting Development of a Promising Intervention for Autism Spectrum Disorders | InTechOpen

ReAttach – The Exciting Development of a Promising Intervention for Autism Spectrum Disorders | InTechOpen
Posted by The Ultra Rare Disease Disorders And Disabilities Foundation at 03:40 No comments:
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ReAttach – The Exciting Development of a Promising Intervention for Autism Spectrum Disorders | InTechOpen

ReAttach – The Exciting Development of a Promising Intervention for Autism Spectrum Disorders | InTechOpen
Posted by The Ultra Rare Disease Disorders And Disabilities Foundation at 03:36 No comments:
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Wednesday, 17 June 2015

What Are Rare Diseases?

Posted by The Ultra Rare Disease Disorders And Disabilities Foundation at 07:11 No comments:
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Thursday, 11 June 2015

National Rare Diseases Office opens in Dublin

National Rare Diseases Office opens in Dublin
Posted by The Ultra Rare Disease Disorders And Disabilities Foundation at 09:58 No comments:
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Specialized proteins may be detected in blood of people with Alzheimer's disease

Specialized proteins may be detected in blood of people with Alzheimer's disease
Posted by The Ultra Rare Disease Disorders And Disabilities Foundation at 00:30 No comments:
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Wednesday, 10 June 2015

U.S. poised to spend $50B on just 10 'breakthrough' meds in 10 years - FiercePharma

U.S. poised to spend $50B on just 10 'breakthrough' meds in 10 years - FiercePharma
Posted by The Ultra Rare Disease Disorders And Disabilities Foundation at 07:23 No comments:
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Thursday, 4 June 2015

Rare Disease United Foundation - Rare Disease United Foundation

Rare Disease United Foundation - Rare Disease United Foundation
Posted by The Ultra Rare Disease Disorders And Disabilities Foundation at 09:52 No comments:
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Antiphospholipid Syndrome (APS) Research - Alexion Clinical Trials

Antiphospholipid Syndrome (APS) Research - Alexion Clinical Trials
Posted by The Ultra Rare Disease Disorders And Disabilities Foundation at 09:44 1 comment:
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Thursday, 28 May 2015

Disruptive Dozen of Neurological Disorders | Nancy Stratman | LinkedIn

Disruptive Dozen of Neurological Disorders | Nancy Stratman | LinkedIn
Posted by The Ultra Rare Disease Disorders And Disabilities Foundation at 04:46 No comments:
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Saturday, 9 May 2015

Information on how many Children in Northern Ireland have been diagnosed with an ultra rare disease - a Freedom of Information request to Belfast Health and Social Care Trust (Northern Ireland) - WhatDoTheyKnow

Information on how many Children in Northern Ireland have been diagnosed with an ultra rare disease - a Freedom of Information request to Belfast Health and Social Care Trust (Northern Ireland) - WhatDoTheyKnow
Posted by The Ultra Rare Disease Disorders And Disabilities Foundation at 14:55 No comments:
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Healing A Rare Form Of Brain Cancer, With A Smile & The 80/10/10 Diet

Posted by The Ultra Rare Disease Disorders And Disabilities Foundation at 02:47 No comments:
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Rare is not an excuse: Curing NGLY1 Deficiency

Posted by The Ultra Rare Disease Disorders And Disabilities Foundation at 02:44 No comments:
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Thursday, 23 April 2015

Health Minister Jim Wells: Wife Grace is back from the brink - BelfastTelegraph.co.uk

Health Minister Jim Wells: Wife Grace is back from the brink - BelfastTelegraph.co.uk
Posted by The Ultra Rare Disease Disorders And Disabilities Foundation at 09:24 No comments:
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Monday, 20 April 2015

Researchers discover genetic factors key to POMC cells

Researchers discover genetic factors key to POMC cells
Posted by The Ultra Rare Disease Disorders And Disabilities Foundation at 08:27 No comments:
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Saturday, 18 April 2015

If You Think Your Life Is "Tough", Watch This And Know That Your Life Is a Blessing

If You Think Your Life Is "Tough", Watch This And Know That Your Life Is a Blessing
Posted by The Ultra Rare Disease Disorders And Disabilities Foundation at 09:12 No comments:
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Wednesday, 1 April 2015

Cambridge Rare Disease Network launch | Hughes Hall MCR

Cambridge Rare Disease Network launch | Hughes Hall MCR
Posted by The Ultra Rare Disease Disorders And Disabilities Foundation at 07:53 No comments:
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Saturday, 28 March 2015

700 Miles to Hope | A Cincinnati Children's Documentary | 2015

Posted by The Ultra Rare Disease Disorders And Disabilities Foundation at 07:46 No comments:
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Saturday, 28 February 2015

Alexion Joins Patient Organizations Worldwide in Support of International Rare Disease Day 2015 | Alexion Pharmaceuticals, Inc

Alexion Joins Patient Organizations Worldwide in Support of International Rare Disease Day 2015 | Alexion Pharmaceuticals, Inc
Posted by The Ultra Rare Disease Disorders And Disabilities Foundation at 08:42 No comments:
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Thursday, 26 February 2015

Policy

Policy: Policy
Posted by The Ultra Rare Disease Disorders And Disabilities Foundation at 08:04 No comments:
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Sunday, 22 February 2015

Antiphospholipid Syndrome (APS) Research - Alexion Clinical Trials

Antiphospholipid Syndrome (APS) Research - Alexion Clinical Trials
Posted by The Ultra Rare Disease Disorders And Disabilities Foundation at 13:36 No comments:
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Friday, 20 February 2015

PVNH Support & Awarenesss founder, Yolaine, talks about PVNH, Ella and w...

Posted by The Ultra Rare Disease Disorders And Disabilities Foundation at 07:24 No comments:
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Rare Disease Day 2015 Official Video

Posted by The Ultra Rare Disease Disorders And Disabilities Foundation at 07:10 No comments:
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Monday, 12 January 2015

NORD Awards New Grants for Rare Disease Research | Rare Disease Dialog Blog

NORD Awards New Grants for Rare Disease Research | Rare Disease Dialog Blog
Posted by The Ultra Rare Disease Disorders And Disabilities Foundation at 04:21 No comments:
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Thursday, 8 January 2015

the-association.org.uk - The Association Blog Spot

the-association.org.uk - The Association Blog Spot
Posted by The Ultra Rare Disease Disorders And Disabilities Foundation at 15:05 No comments:
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Blog Archive

  • ►  2016 (29)
    • ►  March (14)
    • ►  February (12)
    • ►  January (3)
  • ▼  2015 (36)
    • ▼  December (5)
      • Ultra Rare Disease Must Be Included In The Europea...
      • C Diff Foundation Launches Patient, Family Support...
      • These 13 Unbelievable Photos Won A Place In The Mo...
      • Shock figure of 400,000 people on hospital waiting...
      • Gene therapy: A promising candidate for cystic fib...
    • ►  November (5)
      • Fatal Hemophagocytic Lymphohistiocytosis Associate...
      • Rare and Ultra Rare Diseases�
      • Hand-washing: Do's and don'ts - Mayo Clinic
      • What Is Hemophagocytic Lymphohistiocytosis (HLH)?
      • Greg Mulholland MP: Drugs for Ultra-Rare Diseases ...
    • ►  July (1)
      • This video will save a little boy's life #SavingDy...
    • ►  June (9)
      • Rare Nerve Disorder Leaves Harlem Teen Paralyzed
      • ReAttach – The Exciting Development of a Promising...
      • ReAttach – The Exciting Development of a Promising...
      • What Are Rare Diseases?
      • National Rare Diseases Office opens in Dublin
      • Specialized proteins may be detected in blood of p...
      • U.S. poised to spend $50B on just 10 'breakthrough...
      • Rare Disease United Foundation - Rare Disease Unit...
      • Antiphospholipid Syndrome (APS) Research - Alexion...
    • ►  May (4)
      • Disruptive Dozen of Neurological Disorders | Nancy...
      • Information on how many Children in Northern Irela...
      • Healing A Rare Form Of Brain Cancer, With A Smile ...
      • Rare is not an excuse: Curing NGLY1 Deficiency
    • ►  April (4)
      • Health Minister Jim Wells: Wife Grace is back from...
      • Researchers discover genetic factors key to POMC c...
      • If You Think Your Life Is "Tough", Watch This And ...
      • Cambridge Rare Disease Network launch | Hughes Hal...
    • ►  March (1)
      • 700 Miles to Hope | A Cincinnati Children's Docume...
    • ►  February (5)
      • Alexion Joins Patient Organizations Worldwide in S...
      • Policy
      • Antiphospholipid Syndrome (APS) Research - Alexion...
      • PVNH Support & Awarenesss founder, Yolaine, talks ...
      • Rare Disease Day 2015 Official Video
    • ►  January (2)
      • NORD Awards New Grants for Rare Disease Research |...
      • the-association.org.uk - The Association Blog Spot
  • ►  2014 (6)
    • ►  December (6)
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