The Ultra Rare Disease, Disorders, & Disabilities Foundation

Wednesday, 23 March 2016

aHUS Canada applauds approval of first treatment for fatal, ultra-rare disease affecting children

aHUS Canada applauds approval of first treatment for fatal, ultra-rare disease affecting children

Posted by The Ultra Rare Disease Disorders And Disabilities Foundation at 09:13 2 comments:

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Ultra-rare disease Hereditary Tyrosinemia Type 1 highlighted on The Balancing Act® airing on Lifetime Television

Ultra-rare disease Hereditary Tyrosinemia Type 1 highlighted on The Balancing Act® airing on Lifetime Television

Posted by The Ultra Rare Disease Disorders And Disabilities Foundation at 08:46 1 comment:

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New drug helps young Ottawa girl fight ‘ultra rare’ disease | aHUS Canada | SHUa Canada

New drug helps young Ottawa girl fight ‘ultra rare’ disease | aHUS Canada | SHUa Canada

Posted by The Ultra Rare Disease Disorders And Disabilities Foundation at 08:21 No comments:

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Tuesday, 22 March 2016

Government confirms it is abandoning cuts to Personal Independence Payment | Contact a Family

Government confirms it is abandoning cuts to Personal Independence Payment | Contact a Family

Posted by The Ultra Rare Disease Disorders And Disabilities Foundation at 08:59 No comments:

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Friday, 18 March 2016

Rare Girl | Ehlers-Danlos Syndrome - Short Documentary

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Sunday, 13 March 2016

urddad-foundation on eBay

urddad-foundation on eBay

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About | Ultra rare disease foundation

About | Ultra rare disease foundation

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Saturday, 12 March 2016

What are Rare Disease Diagnostic Obstacles?

What are Rare Disease Diagnostic Obstacles?

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Wednesday, 9 March 2016

Home | Ultra rare disease foundation

Home | Ultra rare disease foundation

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Tuesday, 8 March 2016

Hereditary Leiomyomatosis and Renal Cell Cancer (HLRCC) Family Alliance (HLRCC)

Hereditary Leiomyomatosis and Renal Cell Cancer (HLRCC) Family Alliance (HLRCC)

Posted by The Ultra Rare Disease Disorders And Disabilities Foundation at 08:43 No comments:

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Thursday, 3 March 2016

U.K. Aims at $15B Gene Therapy Industry | GEN Magazine Articles | GEN

U.K. Aims at $15B Gene Therapy Industry | GEN Magazine Articles | GEN

Posted by The Ultra Rare Disease Disorders And Disabilities Foundation at 08:32 No comments:

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Blog | Ultra rare disease foundation

Blog | Ultra rare disease foundation

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Wednesday, 2 March 2016

Duchenne A&E Pack – Just another WordPress site

Duchenne A&E Pack – Just another WordPress site

Posted by The Ultra Rare Disease Disorders And Disabilities Foundation at 08:24 No comments:

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Ultra-Rare Diseases in Patients | Alexion Official Website

Ultra-Rare Diseases in Patients | Alexion Official Website: Many rare & ultra-rare diseases are severe, chronic & progressive, with high mortality rates & no effective treatment options.

Posted by The Ultra Rare Disease Disorders And Disabilities Foundation at 07:12 No comments:

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Friday, 26 February 2016

Rare Disease Day Official Video 2016

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Wednesday, 24 February 2016

This video will save a little boy's life #SavingDylan.com

Posted by The Ultra Rare Disease Disorders And Disabilities Foundation at 04:51 No comments:

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Wednesday, 17 February 2016

Home | Ultra rare disease foundation

Home | Ultra rare disease foundation

Posted by The Ultra Rare Disease Disorders And Disabilities Foundation at 00:36 No comments:

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5 Rare Heart Conditions

5 Rare Heart Conditions

Posted by The Ultra Rare Disease Disorders And Disabilities Foundation at 00:29 No comments:

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Rare Diseases Treated with Enzyme Replacement Therapy

Rare Diseases Treated with Enzyme Replacement Therapy

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Friday, 12 February 2016

New Guideline for the Treatment of Convulsive Status Epilepticus

New Guideline for the Treatment of Convulsive Status Epilepticus

Posted by The Ultra Rare Disease Disorders And Disabilities Foundation at 09:46 No comments:

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Wednesday, 10 February 2016

Nathan's Story; Tay-Sachs Disease in the Irish Population

Posted by The Ultra Rare Disease Disorders And Disabilities Foundation at 07:17 No comments:

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Children Dying, HLH Undiagnosed

Posted by The Ultra Rare Disease Disorders And Disabilities Foundation at 07:15 No comments:

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Star Appeal – help us build the UK’s first Rare Diseases Centre for Chil...

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The end of cancer treatment bell at Birmingham Children's Hospital

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Wednesday, 3 February 2016

EURORDIS - The Voice of Rare Disease Patients in Europe

EURORDIS - The Voice of Rare Disease Patients in Europe

Posted by The Ultra Rare Disease Disorders And Disabilities Foundation at 04:15 No comments:

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Tuesday, 2 February 2016

Rare Disease Day Official Video 2016

Posted by The Ultra Rare Disease Disorders And Disabilities Foundation at 03:08 No comments:

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Thursday, 28 January 2016

Shire Clinical Trials and Medical Research | ShireTrials.com

Shire Clinical Trials and Medical Research | ShireTrials.com

Posted by The Ultra Rare Disease Disorders And Disabilities Foundation at 04:09 No comments:

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Friday, 8 January 2016

Top 10 Rare Disease Interviews of 2015

Top 10 Rare Disease Interviews of 2015

Posted by The Ultra Rare Disease Disorders And Disabilities Foundation at 07:29 No comments:

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Comorbidity of fetal alcohol spectrum disorder: a systematic review and meta-analysis - The Lancet

Comorbidity of fetal alcohol spectrum disorder: a systematic review and meta-analysis - The Lancet

Posted by The Ultra Rare Disease Disorders And Disabilities Foundation at 06:51 No comments:

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